Science & Money

Today's Baltimore Sun features a great OpEd by Ruth Faden, director of the bioethics institute at Johns Hopkins, exploring the ethical and moral issues raised by The Immortal Life of Henrietta Lacks, and its relevance to the current debate over health care reform.  In it she says, among other things: ... Henrietta Lacks story touches the very heart of the current debate over health care reform, and the need for universal coverage and access to care. Her tale, like health care reform and the ethics of biomedical science, is tied up in how the least of us live. We need a national…

After ten long years, the serious countdown has begun for the publication of my book, The Immortal Life of Henrietta Lacks, which will be on sale nationwide exactly SEVEN DAYS from today.  I've been posting about my impending book tour, and all the great coverage the book has been getting, on Twitter and Facebook, but thought I'd also post a bit of a press round up here, and an update, for those who (gasp) don't spend all of their time in those places.  If you don't know what my book is about: it tells the story of a poor black tobacco farmer whose cancer cells -- taken without her knowledge…

Big week here at Culture Dish! The Immortal Life of Henrietta Lacks and its author (yours truly) were on the cover of Publishers Weekly (please note: THRILLED!). Inside that issue was a profile of me with some of book's backstory, a short excerpt from the book (longer excerpt coming soon in O, the Oprah Magazine), also a story I wrote about the crazy book tour I'm organizing (posted about previously here).  But that was just the beginning of this week's HeLa developments.  More about that after the jump, but first, a warning: given the fact that my book is about to be released and I'll be on…

Calling all academics: If you'd like a free advanced copy of my book, The Immortal Life of Henrietta Lacks, get thee to Random House's academic blog and request a copy quick, while supplies last (which probably won't be long at the rate things are going). See below for more information on the book, and advanced praise. Added bonus: If you teach the book this spring, you can also get me to come speak at your school/in your classes as part of my book tour. Here's Publishers Weekly on The Immortal Life of Henrietta Lacks: Science journalist Skloot makes a remarkable debut with this multilayered…

Some interesting news about the breast cancer patent lawsuit I wrote about for Slate's Double X Magazine a few months ago:  A federal district court has just agreed to hear the case. When the lawsuit was first filed, many legal experts I talked to said they were sure the case would get thrown out of court for it's unusual approach, namely that it claims that the practice of patenting genes is unconstitutional See my story about the case here. Filings and other documents related to the case available here.  And see below for the full press release about today's news: Court Upholds Right…

Lots of excitement here at Culture Dish:  The final cover for The Immortal Life of Henrietta Lacks has arrived (see left). And ... <drum roll> ... the the book's first pre-publication review has hit the press:  In the issue coming out this Monday, Publishers Weekly gives The Immortal Life a starred review, calling it, "a remarkable debut ... a rich, resonant tale of modern science, the wonders it can perform and how easily it can exploit society's most vulnerable people." (wOOt!) Full review here and here: "Science journalist Skloot makes a remarkable debut with this multilayered story…

Speaking of the debate over patents interfering with medical care, there's a story in today's New York Times that mentions the drug Iplex, which has shown promise for treating Lou Gehrig's disease -- a deadly and thus far untreatable degenerative disease (also known as amyotrophic lateral sclerosis).  From the article: Iplex ... is believed to protect the motor neurons whose death leads to paralysis in A.L.S. Some patients had persuaded their doctors to prescribe the drug when the F.D.A. approved it in late 2006 for children with growth deficiencies. "I started on Tuesday," Debbie Gattoni…

Earlier this week, the American Civil Liberties Union and several other groups filed suit against Myriad Genetics -- the company that holds the patent on the breast cancer gene.  They're hoping to get the breast cancer gene patent revoked, but more than that, they're aiming to stop gene patenting all together.  Today, in my new column in Slate's Double X Magazine, I go into the story of the breast cancer gene and the impact the ACLU claims it's had on science and patient care (a hint: it's not good). I also look at the suit itself, the cases that have come before this one, and what they say…