Rare Sharing of Data Led to Results on Alzheimer's

From the New York Times

The key to the Alzheimer's project was an agreement as ambitious as its goal: not just to raise money, not just to do research on a vast scale, but also to share all the data, making every single finding public immediately, available to anyone with a computer anywhere in the world.

No one would own the data. No one could submit patent applications, though private companies would ultimately profit from any drugs or imaging tests developed as a result of the effort.

More like this

Just one more follow up on the matter of how research universities will make do as federal funds for research dry up. Some have suggested that the answer will come from more collaboration between university labs and researchers in private industry. Perhaps it will. But, a recent article in the…
Ed Yong demands higher accountability in science journalism and has made me think of how in the last two days I've run across two examples of shoddy reporting. These two articles I think encompass a large part of the problem, the first from the NYT, represents the common failure of science…
The question has come up again and again in our discussions on health care in the US and around the world, why does it cost so much more in the US when we get so much less? The drug companies and their lobbyists are already out in force trying to make sure their pocketbooks aren't hit by the…
An article in The Straits Times from newswire Associated Press (AP) drew my attention to a festering disagreement between proponents of an innovative global sharing initiative for influenza information and the World Health Organization, the official UN Agency that has run the global influenza…