Mono, ah, mono

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To all those who were expecting to see me at SfN, the DC bloggers meetup, or the upcoming ScienceOnline09, I apologize: I am really sick. And it all started, as catastrophes always do, with a cat.

Shortly after Election Day, my feisty tortoiseshell cat (above, looking angry as usual) was suffering from a bacterial infection. Unfortunately, the local vet's staff were unable to handle her, and in the process of the examination, she bit me through the arm. The bite swelled up and changed color. Nasty. But I've had cat bites before, so I was unconcerned.

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The next morning, however, I woke up with swollen, rock-hard lymph nodes in my neck, a sore throat, and a mild fever. It got worse. Then it got even worse. Two days later, with everyone declaring I must have the vaguely disco-esque "cat-scratch fever", I was sick enough to give in and go to the urgent care clinic. Since there are none in DC, at least none on my insurance plan, I had to drive over into Virginia. And wait there. And wait. In the end, it was three hours to see a doctor.

Actually, to clarify, I didn't get to see a doctor. She or he was called out on an emergency. But a young NP came in to test me for the obvious culprits, strep and mono. The mono test came back positive. At 32, I'd finally come down with the kissing disease! How embarrassing! (Although probably less so than "cat-scratch fever.")

For the next few days I took a steroid (to reduce the swelling in my throat so I could breathe without struggling) and an antibiotic (not for the mono, which is viral, but for the cat bite, which by this point was a three-inch black-and-purple ring on my arm). Eventually things got a little better, and I could swallow and sleep a little. I was on the mend - or so I thought.

Unfortunately, it turns out they gave me amoxicillin. At the risk of violating nettiquete by shouting: NEVER TAKE AMOXICILLIN IF YOU HAVE ACUTE MONO! You will likely come down with a measles-like rash all over your body. (It's like the mono bonus expansion pack.)

The rash is a fairly common reaction, and there was no excuse for the nurse not to realize the conflict when she prescribed the antibiotic, since she did the mono test herself. In fact, when I felt well enough to do some Googling, even before the rash set in, I realized the potential problem and stopped taking the antibiotic early (against my instincts - I always take the full course of an antibiotic to prevent antibiotic resistance). Within the day, I got a follow-up call from the clinic - it seems the doctor had reviewed my file and wanted me to, ahem, stop taking the antibiotic early. (No explanation was given for this unusual instruction.)

Unfortunately I didn't stop in time, because I came down with the rash anyway. Fun! I was exhausted AND itchy AND looked like I'd been rolling in poison ivy!

In addition, everyone was afraid to approach me. But as the CDC states, most adults have had the Epstein-Barr virus which causes mono already, and are immune. (Many people don't get full-blown mono, so they may not know they've already had the virus). If you're not coughing all over the place, it's darn difficult to pass mono on: you have to exchange saliva, which I don't usually do with my coworkers and friends. All of this means there is no need to quarantine someone recovering from mono. So please, if a friend of yours has mono, try to be sympathetic, and don't leap back, pushing a desk or a chair between you (as happened to me more than once).

The best part of all of this came when I received the bill from the urgent care clinic. Let's see: I sat in a room alone for three hours, coughing up blood, without even a glass of water (did I forget to mention their water main was broken?) I got a mono test, a strep test, and a throat culture. I didn't see an MD. And for this stellar service, they billed my insurance $780. What?!

My insurance didn't cover most of it, but since the clinic was in-network, I sincerely hope they're not going to try to get the balance from me. They'll have an earful coming if they do. Or maybe I'll just cough on them. Mmmm, have some mono!

This experience led me to reflect even more than usual on the absolutely horrible situation faced by people without insurance - especially in this economy. Two large DC-area grocery chains, Giant and Wegman's, just announced they will be offering free antibiotics this winter. They will fill prescriptions for a number of common generic antibiotics at no cost through mid-March. The list varies by store; Giant is offering 36 generics while Wegman's offers nine. Obviously, this is a good PR move for both stores. On the other hand, generic antibiotics are hardly the most expensive drugs putting a crunch on consumers' wallets; if you don't have insurance, you're less likely to go to the doctor in the first place to get a prescription - especially if they're going to charge you hundreds of dollars. And it goes without saying that free antibiotics won't help people with the flu, mono, or other viruses.

Anyway, I felt better briefly in November, but I relapsed in December (probably my own fault - I went to the gym) and have been coughing and exhausted ever since. I understand that the symptoms of acute mono can last up to 6 months, so I have to be proactive and start taking it easy if I hope to recover. So I won't be traveling for the next month or two, and I probably won't be blogging as much. I'm also going to have to forego standing outside all night to secure a place on the parade route for Inauguration, which is truly depressing. As is missing ScienceOnline09, where I hoped to meet many of my fellow bloggers. However, there is a silver lining: you only get mono once.

Usually.

That, and the cat feels a whole lot better.

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the amox thing pisses me off. this is why i get a little testy about the replacement of primary care physicians with midlevel providers. I don't think any of my greenest interns would have done that.

I'll miss meeting you too!

Take good care, Jessica, and then just get Canadian citizenship. (I hope your new president is serious about health reforms for your country. Our model isn't perfect - but it always sounds better to me.)

I had no idea about the amoxicillin. Good to know.

Damn, BioE, I'm sorry to hear your recovery is going slow. Take it easy and feel better.

And if you think your blog might become too moribund with less frequent posting, Comrade PhysioProf hereby volunteers to guest post for you!!! HAHAHAHAHAHAHAHAHAH!!!!!!!!!

Wow. What an horrible ordeal! :( I am truly very sorry. I am horrified by the tale of your encounter with our republic's grotesquely insufficient and unprofessional healthcare system. Alas, your tale's horror matches other tales I'm hearing with increasing frequency.

I had mono in grad school. (No kissing going on at the time, either, that's for sure.) It's no fun. I hope you recover soon.

Thanks everybody! PalMD, I'm embarrassed I didn't catch it myself, simply because I've taught physiology... oh well. The rash was mostly annoying.

Glendon, I am sure you are going to kick ass at SciOnline09 - you don't need me there. But it will be a big disappointment not to meet you in person!

I'm optimistic I'll be better soon - I recovered my sense of smell today for the first time in about three weeks, which makes me hope I may be able to drink a glass of red wine again (even the best wine tastes like crap when you're congested). But if I can't keep the blog up, PP, you're the first one I'll call!

Not that i advocate for an overly litigious society but having the threat can be beneficial. If the clinic comes after you for the uncovered portion of the money i would suggest informing the administrator that since you don't have the money to pay them, you'll need to seek funds through a legal redress of the malpractice their nurse performed in prescribing the amoxi.

I'm so sorry! I really wanted to meet you at ScienceOnline! And I hope you feel better soon.

Are you drinking lots of tea? When I had mono (it was so bad my parents almost pulled me out of a semester of college), echinacea tea was about the only thing I could stand. I drank a TON of it, it helped keep me hydrated (which will help your symptoms a lot), and the warm liquid was incredibly comforting. I don't really believe what people say about the properties of echinacea, but it felt good, and that's what mattered.

Also, DO NOT drink until you are better. Just don't. When you have an already sore throat, that little bit of dryness you get from alcohol is torture.

That is horrible! I can't believe they made a basic blunder like that! I would second the suggestion to hold on to the malpractice threat card if they give you any trouble over the huge bill.

That said, glad you're getting better. Here's wishing you get well soon. Love your awesome posts, although I comment rarely.

So sorry to hear you got mono. When my wife got it, about age 34, we had 3 children, about 3, 5, and 8 years. She was pretty sick at first, with high fever, but she never coughed blood. Our son about 5 also got it; he was ill for a couple of weeks, and that was it. I adjusted my work some, but she saved her energies to handle the kids and work at a summer camp during the day, and conked out in the evening. She was able to get quite a bit of rest, but I had to keep reminding her that feeling tired was a sign she needed to rest!
It was fascinating to watch the ebb and flow of her energies. For about 6 months, as often noted, she had a cycle of needing extra rest, then feeling better, then needing extra rest. The cycles lasted about 7-10 days. I wondered if the cycles came from an increase and decrease of the virus load. Each cycle, the fatigue at the bottom was a little less, and the energy at the top was a little more. It was too regular to be associated with any pattern of her activities I could observe.
Good luck in your recovery and remember, if you feel tired, rest. ;) I'd be interested to hear if you observe an ebb and flow of energy.

I think that, with "it all started, as catastrophes always do, with a cat," you have the first line of a comic novel.

You also have a beautiful cat.

Oh yeah, and sorry you were sick...

As someone who had "a mono like illness" that turned into 18 years of CFS I so absolutely and totally wish you well quickly and completely. Do not push yourself. Listen to your body and pace yourself and it should clear up after its six months. I sure hope so. Wishing you all the best and glad to hear the cat is well. :)